Csendes Barbara

Barbara Csendes
Oktatási központ
Munkahely
Évfolyam:
2023/24
Kutatási terület:
Gyermekgyógyászat
Ország:
Magyarország
PhD szakterület:
genetika
gyermekgyógyászat

TOPIC

Impact of new genomic technologies on patient care

 

VISION

Boost the effective utilization of genomic technologies.

 

MISSION

Recommend, develop, and support educational and financial policies.

 

SPECIFIC GOALS

PROJECT 1: Investigating the effectiveness, safety and costs of orphan medicinal products in spinal muscular atrophy: a systematic review and meta-analysis.

PROJECT 2: Investigating the health-economical impact of orphan medicinal products for patients with spinal muscular atrophy: Prospective follow-up study.